Its been a little while since my last update. In this case no news is good news. Ive been keeping myself busy between rounds and enjoying feeling somewhat myself again. Im a list person so I have finally been tackling the giant to do list thats been building up for over a year. Ive also been ticking off a few places I’ve always wanted to visit. The most recent being Rome! A great place but definitely not a relaxing weekend away with all the crowds, plus there is so much to see! Now, I’m not a religious person but I think we were the only people to ever walk through the Sistine Chapel and not realise that was it until we were at the exit and looked at the secret photos I took, due to the strict security. I don’t think I can get into trouble for admitting that here… After countless rooms with the most amazingly painted ceilings it was just another room with a painted ceiling and shoulder to shoulder crowds. St Peters and the Coliseum were definitely my favourite spots. It was a mission trying to keep to my diet as it seems all Italians somehow survive on a diet of pizza, pasta and gelato! But we found a quality little place called Ginger. Check them out if you’re ever there. They do fresh food to please everyone, plus loads of organic stuff. My mum is a Saint for putting up with me whilst I was hungry and walking miles through the hot and busy streets, following google maps on my phone looking for heathy restaurants. One of my flaws is I get seriously hangry. The Italian border control was very ‘relaxed’ and it was the first place that took my word for it that it was my shoulder setting off the alarms and not a bomb, and then just gave me the nod through the gate.
As you have probably guessed from the title of this post I had some good news after this weeks CT scan. The tumours in my lungs have not changed but the ‘abnormalities’ (as they frustratingly still call them) in my liver and pancreas have shrunk. My oncologist even struggled to find the shadow on my pancreas when I asked to see the scan. I would be lying if I said I wasn’t frustrated and concerned the tumour on my lungs hasn’t also reduced but looking at the positives, the little fucker has stopped growing and the chemo/everything I am doing has done this. After all I have been through, everything Im doing to fight this and after being knocked down to rock bottom recently, its a well needed boost for my morale. I can actually feel the pressure temporarily release when I get good news. Its another up in this rollercoaster. Lets hope it keeps on going up and stops while at the top! Its been a great week and its the first time I’ve had that Friday feeling in well over a year. Ive had a smile on my face since being told the news yesterday.
It’s been a while since my last post and I want to keep those that are interested up to speed. I’m due to start my 3rd cycle of chemo next week and I’m currently feeling really good, although there have been some dark days. One of the things about my situation is the majority of people only see me when I am well enough to venture out the house so people only see the good days. The chemo I am on at the moment is a mixture of 2 drugs. I take Temozolomide tablets in the morning and then a drip called Irinotecan later in the day, which only takes half an hour if they get their shit together at the hospital. And that’s each day for 5 days. A few times I have waited all day in the hospital chair but I won’t bore you with those exciting stories.Continue Reading